When I call my mom I don't know what to say. So much of her life is now defined by her illness. She doesn't work, read, or socialize so those typical topics are not available for discussion. I can tell her about my kids activities, but at some point, there just isn't much to talk about that does not involve her health or long term outcome. It must be annoying and exhausting for her. She was a doctor and she was never short of interesting things to discuss. For the past year that was my go to conversation. Bringing up some "medical"topic always sparked a good conversation. But recently that seems to have slipped from her memory too. My aunt mentioned that highly intelligent people who get dementia are able to hold it together and function much longer time than those with average intelligence. But at some point, even the people of the highest intelligence start to lose reality and when they do, they lose it so much faster. It makes sense.
I ran into a friend today and she asked me why I hadn't returned her call. I made the excuse that I was busy with the kids, work, and my ailing mother (all true), but I haven't called her back because all my friends seem to want to ask me about is my mom. It is because they are wonderful friends that are concerned for me and what I am going through, but at some point, her illness begins to define not just her, but me too. She has got to be sick of every conversation being about her health, and I too am geting sick of every conversation being about her health. I need a break.
This friend today mentioned that she saw me out of the corner of her eye, at quick glance, and that I reminded her of my mom. First, it is time to stand up straighter! But the comment terrified me. For loved ones, the diagnosis of dementia leads to our greatest fears - of all sorts. A loved one lost in the city, a loved one being taken advantage of, a love one wondering into traffic. These are not my greatest fears for my mom's diagnosis. No mine is more selfish. My greatest fear is this diagnosis is genetic and that yes I am so much like my mom.